Hannah and Daddy after the colonoscopy!!
Dan & I both felt OK with this because we just wanted to figure out what was going on!!! WELL.... the Meckal scan came back neg. which was good, but I was really hoping that was the answer. It was an answer and easily fixed. SO onto other tests. The next day they decided on a colonoscopy. At 2:00 we were told "NO MORE FOOD" well that is like a death sentence to a 4 yoar old on steroids!!!!! It was pure torture. Screaming & yelling at us & the doctors "WHY WERE WE BEING SO MEAN AND NOT LETTING HER EAT????" Too take some time away we went down to the playroom. There was a little girl exzactly the same age as Hannah, with blond hair, blue eyes..... she was SO swollen she looked pregnant. IT was so sad. I was talking to her mom and found out she had NEPHROTIC SYNDROME also. At that moment I felt so blessed that Hannah had never gotten that bad (knock on wood). The poor little girl was miserable. I talked more with her mom about a vitamin I think I am going to try!!!!!
We started an IG tube that goes down the nose into the stomach at 6:00 or so..... This was giving her the medicine to start making her poop!! During the night she pulled it out and they put another one in. She was sedated so she slept though most of the events that night. Lucky for her!!!! She was totally cleaned out by about 8:00 am and slept until noon. The colonoscopy was at 3:30 so we had a few hours of dealing with NO FOOD... IT was tough, but we made it. The results were GOOD. THey found "lymphatic nodules" that had been irritated by either an allergic reaction to food or a virus. So as a precaution, we are cutting out milk for a month and keeping a close eye on all potty breaks!!!!!
We are SO thankful to all of you, to our doctors that helped through this very frustration time, and especially for our family for taking care of TAYLOR, ETHAN, & MAKENA. AND the much needed visits to keep Hannah occupied!!!!!
3 comments:
Oh my gosh! Hannah is one tough little girl. What a trooper. At least you are in good hands at Primary Children's Hospital.
I am so glad you received the answers you needed. Hannah is such a wonderful girl and Kessa misses her so much. Give her a big squeeze for us - we have been thinking about her ever since we read your first post.
Good luck with everything. We will keep you all in our prayers.
Hope to see you tonight at the lights and glad that you are out of that stinky!!! hospital.
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